- The Home Office have agreed to a granting a “compassionate license” application to Alfie Dingle
- It is still unclear whether the Home Office can legally grant the license
- Alfie suffers untreatable epilepsy, suffering 100s of seizures a week without cannabis
- Hannah, Alfie’s Mum, handed a 380,000-strong petition to Downing Street
- MPs and celebrities, including Patrick Stewart, have lent their support to Alfie’s cause
Alfie Dignle, the brave young boy who suffers from a severe form of epilepsy, is one step closer to being granted a legal medical cannabis license.
Hannah Deacon, Alfie’s Mother, met with the Home Office yesterday to deliver a 380,000-strong petition to Downing Street.
The petition called for the British Government to show compassion and allow Alfie to legally access the only medication which safely prevents him from suffering up to 100 seizures every few days.
Alfie with his loving parents
Alfie requires a combination of both CBD, which is legal in the UK, and THC, which remains a Schedule I Substance (meaning the Government view it as having “no medicinal value”).
Hannah explained why getting Alfie a combination of both THC and CBD is so important:
“Alfie was in hospital every four to ten days, having up to one hundred seizures at a time, needing up to five doses of IV Methylpred before medical cannabis.”
“He would also need lots of rescue medications and anti-epilepsy drugs via IV.
“He would have a range of seizures, including long ones for over fifteen minutes.”
Hannah and her family were forced to temporarily move over to Amsterdam to get Alfie the right medication he needed, where his condition immensely improved:
“We have been using a whole plant cannabis oil called Bedrolite, and THC oil called Bedica.
Both are made by Bedrocan in Holland.
“This is the oil we want prescribed.”
“Since he’s been on CBD and THC he now has one seizure a month, needing one third of a dose of steroids that he used to have.”
“We met with the Home Office and they agreed to a “compassionate license” application, but, they cannot say whether it would be put through as that would be illegal.”
– Hannah Deacon
However, since the family came back to the UK, where it is illegal to combine THC with CBD (unless you have a Sativex prescription, which can only be prescribed to MS patients).
“Since taking him off the THC he now has a cluster every two weeks.
“It’s so clear he needs the THC oil.”
Bedrocan: Legal medical cannabis
Discussing yesterday’s events, Hannah told us: “We met with the Home Office and they agreed to a “compassionate license” application, but, they cannot say whether it would be put through as that would be illegal.
“There is a process they need to follow.”
While the Home Office has not yet confirmed whether or not they will indeed allow Alfie to be prescribed THC, Hannah remains positive about the future:
“However, we are very encouraged by what happened yesterday and hope we will be able to have a license, but it’s not a definite.
“We feel it’s a very positive step in the right direction, however, we’re very concerned about the timescales given.”
Alfie’s story has inspired the nation since Hannah made a second appearance on national TV to plea for some compassion from the Government.
Politicians across different parties have offered their support to Hannah and Alife, providing the brave mother with a larger platform to share her story:
“It’s taken a lot of hard work behind the scenes from MPs and Peers who support us and asking the media to tell our story.
“Our local MP was very helping also and organised meetings with Government.
“We have a lot of support for Alfie which has helped being heard immensely.”
The British Government’s callous refusal to legalise access to medical cannabinoids has resonated deeply with the British public, with stories like Alfie’s sparking national debates on whether or not to follow the growing trend of legalising cannabis for medical uses:
“We have had a huge amount of support; many people cannot understand why Alfie would be denied this treatment.
“I think public opinion is changing.
“It’s important to separate the issue of recreational use and medical use I believe them people are able to understand what we’re asking of the government.”
Alfie and Hannah’s journey can be followed from their official Facebook page.