His mother, Lisa, fought a hard campaign to raise awareness of Cole’s situation amongst policy-makers and politicians, while also raising thousands for other families in similar situations.
Lisa helped launch Parents of Hope campaign last year, which aims to reform the current laws and procedures for acquiring medical cannabis licenses.
Lisa (left) and Karen (right): Founders of Parents of Hope, a medical cannabis campaign charity
Even with the change in the law, Lisa and her desperate family were forced to become “Cannabis Refugees,” trying to source whole plant cannabis treatment (which includes THC) from Spain.
Scottish MP, Monica Lennon, raised Cole’s case in Scottish Parliament last Thursday, bringing their story to Nicola Sturgeon’s attention.
He was offered medical cannabis treatment the next day.
Lisa also expressed a sadness that other children in Cole’s situation won’t be granted the same access he is:
“Cole is one of only five children in Glasgow picked out a hat, and 10 from the whole of Scotland to get Epidiolex until more is available in May.
Lisa with her brave young medical cannabis warrior, Cole (Image: East Kilbride News)
“I have no doubt this is because I have been shouting about our pain and struggles. Now, after being told no for nearly a year, we finally get it.
“I will get Epidiolex in a few weeks and I pray this works for Cole because it’s all the UK have to offer.
“If this doesn’t work there’s nowhere to go here as my friend Karen Gray is discovering as she begs for her son Murray to be given a medication called Bedrolite which has already proved successful and life-changing and is already prescribed to children in England under private prescriptions.
“I want to continue to fight for all the children waiting and also for there to be a much clearer route for exhausted parents and for us to have options – not to feel pressure to accept the one thing on offer.
“Also, I need to know there’s a plan B if Epidiolex doesn’t work for Cole.”
While being given a prescription for CBD-based Epidolex it is certainly a positive step forward for Cole and his family, Karen Gary, mother of Murray, who also suffers intractable epilepsy and already has a prescription for Epidolex, has found the CBD-only medication has already lost its effectiveness.
The Edinburgh mum explained:
“When I started campaigning and found out the UK is the biggest provider of cannabis worldwide, I was outraged.
“Murray has been in hospital since last December.
“Two weeks after he started using Epidiolex we went home and he went back to school – his seizures gone.
“It’s crazy because there’s so many parents giving it to their kids illegally and just keeping quiet about it because it’s helping them and they’re so scared of getting arrested or a visit from social services but it’s helping their children lead normal lives – that’s wrong.
“They should be getting help by their doctors.”
Lisa thanked everyone involved in Cole’s campaign especially Monique McAdams of East Kilbride Community Trust, MP Dr Lisa Cameron, Monica Lennon MSP and everyone who fundraised for and donated to Parents of Hope.
A spokesman for NHS Greater Glasgow And Clyde said Epidiolex was “not yet licensed in the UK,” which means the administration of the drug to any patient is subject to a clinical assessment.