Doctors recommended that Karen put Murray on a ketogenic diet, which is high in fat and low in carbs and often undertaken to tackle the problem.
Due to the side effects of the steroids, however, Karen believes that the ketogenic diet is a ‘last resort’:
“We have a choice: either a ketogenic diet or medical cannabis.
“The ketogenic path would be completely impractical.
“Murray would be restricted in what he can eat, which, due to the steroids, would be impossible!
Karen appearing on BBC Radio Scotland with Kaye Adams
“He loves pasta, which would be banned, and there is a risk his blood sugar levels could drop because of the food.
“I would have to hand prep every meal, so there’s a good chance we wouldn’t be able to take him to parties, for a meal, a holiday, anything.
“I don’t want to put my son through that.
“I worked out that with a ketogenic diet, there would be a 33% chance of the seizures stopping. With cannabis, it would be 40%.
“Medical cannabis should not be our last option.”
While Cannabidiol (CBD), the cannabinoid most associated with treating epileptic seizures, is legal in the UK, Karen believes that a combination of THC and CBD will be needed to give her son the best chance of a normal life.
Karen could easily purchase CBD from a high-street, such as from AHED (Lancashire), but the mother has concerns about not doing it with a doctor’s guidance:
“Since our story made the headlines, we’ve had so many wonderful offers from so many CBD companies for free trials.
“But, with a prescription, we will be able to be monitored, for example, how Murray’s liver reacts to the new drugs.
“It will give me some reassurance having a medical professional guide us through the process. I want to get him off the other medications, which I will need guidance with.
“We have not tried any cannabis medication, yet. I want to do it in the right way.
“Mike Barnes, a fantastic neurologist, supports the argument that THC is a safe substance, so I feel like it is the right option to wait until we can access full spectrum.”